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IT CAN BE DIFFICULT TO KNOW WHEN TO TAKE ACTION, OR WHAT TO DO. THIS IS A GUIDE ONLY, AND IT IS RECOMMENDED THAT YOU SEE YOUR DOCTOR
CODE RED? OR IF IN DOUBT, DIAL 111 AND ASK FOR AN AMBULANCE
🟢 GREEN – Self-Manageable Symptoms
✅ Mild symptoms that are familiar and manageable
✅ Usual tremors, weakness, or dissociation that settle with rest
✅ Fatigue, brain fog, or mild pain that improves with pacing
✅ No significant change in symptoms
What to do:
Use grounding techniques, relaxation, and pacing
Stick to your usual symptom management plan
Maintain hydration, nutrition, and gentle movement
Engage in calming activities (breathing exercises, mindfulness, distraction techniques)
🟡 AMBER – Needs Help
⚠️ Symptoms are worsening or lasting longer than usual
⚠️ Increased weakness, tremors, or dissociation affecting daily life
⚠️ Pain or discomfort that does not improve
⚠️ Increased emotional distress, anxiety, or difficulty coping
What to do:
Contact your GP, for a referral to a FND specialist for advice
Reduce activities and prioritize rest
Seek support from a caregiver, friend, or family member
Adjust medications or treatment plan under medical guidance
If symptoms persist or worsen, consider urgent care
🔴 RED – Urgent Care / Hospital
🚨 Sudden severe weakness, paralysis, or loss of movement
🚨 Intense or prolonged seizures / non-epileptic attacks (NEAD)
🚨 Severe breathing difficulties or loss of consciousness
🚨 Symptoms are significantly worse or unusual for you
🚨 Risk to personal safety (e.g., falls, injuries, self-harm)
What to do:
Call emergency services (111) or go to the hospital
Ensure a safe environment if experiencing seizures or dissociation
Inform medical staff about your FND diagnosis to receive appropriate care
Have an emergency plan in place with family, caregivers, or health professionals